Second Opinion on My Diabetes Please

My diabetes diagnosis has not been a smooth one. From the get go, the way my symptoms came on just didn’t seem right for a Type 2 diabetes diagnosis. The way I didn’t respond to typical oral meds or other T2 drugs and how a keto diet keeps my blood sugar in the high 7’s and 8’s instead of down where I need to be in the 5’s and 6’s. It all screams “not T2”.

In fact, the more adults that are diagnosed with T1 that I talk to (LADA folks), the more my story sounds like theirs. I have so many people say, “you sounded like me!” that it’s pretty crazy.

When my internist called me after having patient talks with her colleagues and said she was going to go with T2 even though there are a lot of things that doesn’t sound like a typical T2, I decided I wanted to exercise my right of a second opinion. Especially since she wanted to pull me off insulin and put me back on oral meds because I’m “type 2”. I’m finally starting to feel better, have more energy and loving life again so you want to put me back on metformin which not only didn’t work but made me horribly sick?

No fucking thanks.

Another LADA patient in the Netherlands told me to try an internist up at her hospital in Leeuwarden. I didn’t get her internist assigned, but on Thursday (6 June 2019) I had my appointment and even though it’s literally a trip to the end of the earth, I’ve got to say it was pretty refreshing to be treated like a human and have my symptoms, not my potential type, be discussed.

The Second Opinion

First, when I go back up to have my vitals taken again for my patient record, they’re probably going to congratulate me on my great weight loss. I’ve been sticking around 111kg but chose to wear combat boots (they’re new so I’m trying to break them in before a festival next month) and jeans. So my weight was 116kg. Oops, that wasn’t well planned out!

Next I met the internist. She was a lovely lady who actually listened to what I had to say, took symptoms into consideration, was interested in the technology I’m using to control my diabetes, didn’t berate me for wanting to stick on insulin vs. going back onto oral meds, and is retesting what Almere has done.

She also said if I end up having to be diagnosed T2, they do have T2s on pumps. It’s just a bit longer of a process than with a T1 for insurance purposes. That’s wonderful because Almere doesn’t even want to try.

One thing I did find interesting is she thought my A1c was a little too low for her liking BUT she actually explained why. Since I’m on insulin, if I’m on the low end of normal most of the time the chances of feeling hypos becomes less. Well, I already don’t really feel hypos, especially when exercising since I already have an exertion headache, but I can understand where she’s coming from.

Funny how that is when things are actually explained?

Something else she wasn’t happy with is the fact that my cholesterol from back in January was too high. That’s one of the things she’s retesting and if it’s still high I have to take something to bring that down. I requested anything but statins and she was agreeable to try something else first. If it doesn’t work I’ll have to go on statins for a very short time before being able to go on to something else due to insurance (it’s still evil, no matter where you live).

Then of course she’s also redoing the antibody and c peptide tests. It looks like this will be a random c pep since I didn’t have to do it fasted.

Finally, I’ll be getting an appointment with the diabetic nurse, especially since it looks like the basaglar probably isn’t the long acting insulin for me due to the problems I’ve been experiencing with staying too high at night but waay too low during the day. It didn’t even dawn on the dn here in Almere that the type of long acting insulin might be a problem.

So all I can do now is wait for my next appointment and see what lays in store. However, it seems a lot more promising than it did here locally!

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