09
May
2019

What Am I? My Diabetes Diagnosis Story

On Monday morning, 14 January 2019, my family doctor called me with the news that my fasting blood glucose was 18.9 mmol/L. I was to come in immediately and get a prescription of Metformin and see the diabetic nurse on staff. Honestly, I wasn’t surprised about this news since all the signs and symptoms of diabetes had shown up 2 months prior.

I couldn’t break away from work right then and there to drive the 60 minutes back to my home city, so I promised I’d come in the next day to see the diabetic nurse.

A Good Moan and Finding Out Adults Can Get Type 1

Of course the rest of the work day was blown so I started texting with my best friend in the states. The first thing she asked is, what type are you?

“Type 2 of course…” I said, but then she told me I should look up something called LADA. That’s Latent Auto-immune Diabetes in Adults. Unlike juvenile diabetes, it can take forever to get to the insulin dependence part and often gets misdiagnosed as T2.

Meeting the Diabetic Nurse

The next day I went in to meet the diabetic nurse who did my vitals and gave me my Metformin 500mg 1x a day prescription. I requested the extended release but I was told this wasn’t available in the Netherlands (it actually is..).

We talked about diet and exercise but up until this moment I had been eating keto. That’s under 35g net carbs a day. Yea I had cheat meals but I was 90% on keto and if I was a T2 diabetic keto and T2 should go hand in hand. She told me to keep going on the diet and take the meds. She’d also refer me to the diabetes center at the hospital in case it’s actually LADA.

The Next Few Months Summed Up

The next few months were hell. Metformin didn’t work at all to bring my numbers down. All it did was make me incredibly sick to my stomach and shit my pants at a conference.

I tried Ozempic (a T2 drug that slows down carb absorption as well as force the pancreas to produce more insulin). Not only couldn’t I eat but it gave me wicked medicine induced neuropathy that made my feet feel like it was on fire.

In between the Metformin and Ozempic I was prescribed long acting insulin as well and my numbers slowly started to go down but got stuck at 7.8 to 9. It seems the keto diet kept my blood glucose high for some reason. As soon as I started eating carbs my bg dropped to normal range but then the postprandial spikes were wicked roller coasters.

Finally Issued Fast Acting Insulin

After going back and forth on oral meds, I begged for fast acting insulin to help with those god awful roller coasters after eating. The diabetic nurse reluctantly handed it over after my husband made her head roll. From here, things got better.

My numbers dropped steadily into normal range and while carbs of course still caused postprandial spikes they weren’t as quick to go up and come down as before. That was a relief. Things started to look up.

Results of the C Peptide and Antibody Tests

I then saw the internist who informed me my c peptide was normal and my antibody tests were negative. Regardless that how the symptoms coming on were highly abnormal for a T2, that I couldn’t eat keto, that oral meds weren’t working, she was going to diagnose me as T2 (she originally was going to go ahead and go with T1 for insurance purposes). And that’s when I decided to get a second opinion…

This was a pretty short and fast diagnosis story. I’ll come back over time and add more posts to flush out this story and link them to the relevant parts of the story.

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1 Response

  1. 2019-06-09

    […] My diabetes diagnosis has not been a smooth one. From the get go, the way my symptoms came on just didn’t seem right for a Type 2 diabetes diagnosis. The way I didn’t respond to typical oral meds or other T2 drugs and how a keto diet keeps my blood sugar in the high 7’s and 8’s instead of down where I need to be in the 5’s and 6’s. It all screams “not T2”. […]

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